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The International Association for the Study of Pain

Co-Design, Development and Implementation of the Power Over Pain Portal for Youth with Chronic Pain

Panel Discussion

Abstract Description

Pediatric chronic pain is a rising public health concern. Given its high prevalence, there will never be capacity to treat everyone within tertiary care clinics and early tailored intervention could prevent lengthy wait lists and functional deterioration. The PoP Portal will empower youth from across Canada with rapid access to early, flexible, and individualized chronic pain interventions to improve quality of life and functioning. The PoP Portal is a comprehensive virtual platform co-designed during the pandemic by healthcare providers and a diverse group of Canadian youth living with chronic pain. It includes (a) participant registration, (b) self-assessment tools (completed bi-weekly to help guide the participants’ choice of interventions), and (c) evidence-based virtual educational (pain neuroscience; Step 1), web- and app-based Cognitive Behavioral Interventions for pain management (Step 2) and virtual peer support (Step 3) that are delivered as per the Stepped Care 2.0 model(i.e., based on participant needs, readiness, and preference). In this panel discussion, I will describe the creation and co-design of the Youth PoP and highlight the involvement of people with lived experience. I will showcase the portal and describe the available interventions. I will also share current implementation and evaluation efforts of the PoP Portal and detail preliminary findings around the ability of the portal to improve rapid access to evidence-based chronic pain care and enhance clinical outcomes for youth with chronic pain.

Speakers

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