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Pain in autistic children: Interviews with child-parent dyads.
Panel Discussion
Both pain and autism are defined as having an overriding sensory element suggesting autistic people may feel more, or less pain than neurotypical’s. Yet literature fails to find differences in autistic pain experiences to allow this health inequality to be scientifically addressed. Bethany will discuss the first study of her PhD which began to address these inequalities using interviews with both autistic children and their parents to explore a dual perspective of autistic children’s pain experiences. Bethany will talk about the way in which autistic people codesigned the study from recruitment through to final analysis highlighting the key message of “nothing about us, without us”. Findings will be described in detail with key points which would be of interest to healthcare professionals highlighted for their consideration; these points will include themes around pain disclosure, pain behaviour, healthcare communication, and parental advocacy. Themes will be presented from both a child and parent perspective giving an interesting insight to the wider lived experience of pain which must be considered within the autistic population. Bethany will also discuss how her own lived experience as an autistic person navigating healthcare settings has informed this work.